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5 Hilarious Tweets From Ankylosing Spondylitis Patients You Can Relate To

Ankylosing Spondylitis is no joke. It is a serious condition that can cause a lot of pain. You wouldn’t guess it from these twitter users who are making light of their situation, while raising awareness of an often neglected condition.

 

1.You tell em’ Karl!

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2. Annie its a pain in ours too. Keep up the awareness

3. Yeah…. one glass of water isn’t gonna do the trick

4. @FatherSpike congrats on being listed twice

5. You can’t have a post of photos without our favorite feline friends

source;http://patientworthy.com/

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Ankylosing Spondylitis: There is hope

Ankylosing Spondylitis is a chronic inflammatory condition that affects one out of hundred citizens of the western world. It’s characterized by inflammation and fusion of the spine starting with the sacroiliac joints and finishing in the cervical vertebras. Other big joints such as hips, shoulders, elbows and knees are usually affected. The HLA-b27 gene is no longer important for the diagnosis because of the increase in the number of sufferers that don’t have it and still experience the symptoms of the same disease.

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AS can manifest itself as inflammation of the uvea (uveitis) and it’s strongly related to Crohn disease. Current treatment depends of the disease activity, varying between NSAIDS, DMARDS and biologic treatment, this last one being a huge step forward in the treatment, slowing the progress of the disease and improving notoriously patient’s quality of life. Still, almost 40% of the patients don’t react to antiTNF therapy and can’t reach remission. Those that are able to achieve this, have to cope with serious side effects that come with these drugs. Some of the most feared adverse reactions to biologic drugs are the increased risk of cancer and development of another autoimmune diseases (there are case reports of patients developing multiple sclerosis, lupus and psoriasis after the first injections). Therefore, even knowing that the quality of life of the average AS patient is better nowadays than it was 20 years ago, we shouldn’t be satisfied because patients depend on the dispensation of expensive drugs, chronic pharmacologic therapy, life threatening side effects and, even worse, a lot of them are still suffering day after day.

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AS is the disease that raises the most interest in the bowel-joints connection. Between 5 and 10% of the patients with AS develop IBD. Moreover, almost 60% of them have subclinical intestinal lesions that can be seen on a colonoscopy. An increased intestinal permeability has been reported in AS and several easily treatable intestinal infections such as giardiasis can develop a reactive arthritis that mimics AS. One of the most used drugs in AS is Sulfasalazine, an intestinal antiinflammatory used also in the treatment of IBD. Even today, researchers still don’t know why Sulfasalazine reduces joint disease. The only fact is that it reduces intestinal permeability and has small antibacterial effect, attributed to Sulfapyridine.

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Due to this clear relationship with the bowel, some doctors have tried to modify the diet of their AS patients in order to alter the progress of the disease. Seignalet treated 122 AS patients with his ancestral diet, with a 90% success rate. Lutz had a similar success with a ketogenic diet (less than 72g of carbohydrates per day). Nowadays, many patients are successful with a paleo diet. There’s something in common in all these diets: drastic reduction of carbohydrates through elimination of grains and processed food. Here’s where we must talk about the most famous dietetic treatment of this disease: the Low Starch diet, developed by Alan Ebringer and followed mostly in the anglo saxon culture. In this diet patients had to remove or reduce the ingestion of rice, potatoes or bread and increase the consumption of fish, meat and vegetables.

Some patients went totally no starch and had even better results. Ebringer tried to explain his theory by pointing to one specific bacteria as the culprit of the disease process: Klebsiella pneumoniae. Kp is usually present in the human bowel and, in Ebringer’s opinion, would cross the intestinal epithelium and, due to the fact that its genome is similar to the HLA-B27 gene, would cause a immune reponse through its interaction with the mentioned gene. This theory is called molecular mimicry.

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The only proofs that Ebringer showed to confirm his theory were:

1) A poorly designed study that tried to show a relationship between Klebsiella’s antibodies in faeces and AS disease activity. The studies trying to reproduce this result failed one after another.

2) The fact that Kp uses starch as its nutrient. The consumption of starchy foods such as rice or potatoes would therefore increase Kp in the bowel and disease activity. Every researcher specialized in this knows that not only Kp, but the vast majority of bacterial strains in the human bowel need starch (soluble fiber) as food. Eliminating starch from your diet will modify your ENTIRE gut flora, not just Kp.

Both proofs were discredited and aren’t taken into account when studying the relationship between gut flora and AS disease activity. Molecular mimicry falls by its own weight: HLA b27 patients still develop AS. Patients without Kp antibodies still develop AS. Ebringer hasn’t got an answer for any of these cases.

Kp is definitely not the only culprit of the inflammatory process in AS. There are probably several bacterias that interfere in the process, which is still unknown and most probably multifactorial. Bacterial and food proteins cross the intestinal barrier starting an immune reponse. Ebringer’s hypothesis wasn’t correct but that doesn’t mean that his treatment isn’t useful. The no starch diet is nowadays the best non-drug treatment for AS. Despite this, many patients don’t improve enough by simply eliminating starch from their diet so more measures are needed.

AS treatment should be directed to restoring the intestinal barrier, modifying the microbiota and management of symptoms.

Our treatment for AS:

  1. Restore the intestinal barrier:
  • Boswellia gum resin or low dose Sulfasalazine
  • L-Glutamine
  • Intermitent fasting
  • Clostridium Butyricum+prebiotic (psyllium seed)
  1. Modify the microbiota:
  • LCHF diet eliminating starches. Max 100g carbohydrates per day.
  • Consumption of probiotic foods such as kefir and sauerkraut
  • Fecal transplant when the disease is in remission
  1. Management of symptoms:
  • Curcumin and Boswellia gum resin
  • Omega 3 (fish+supplements)
  • NSAIDS alleviate symptoms short term but aren’t recommended for chronic treatment
  • Cryotherapy
  • Physical Therapy in warm swimming pool

A food allergy IGG test could be added in order to adjust better the diet. The effects of a dietetic change are usually noted after 4-12 weeks. In future articles we’ll talk deeply about the LCHF diet. It should be noted that AS is a disease that responds well to dietary measures, therefore we recommend the patients to be well informed about their treatment options.

source;http://stopautoimmunity.com/

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Why I No Longer Divide My Life Into ‘Before’ and ‘After’ Ankylosing Spondylitis

When I was diagnosed with ankylosing spondylitis (AS), I felt like my life was divided into Before AS and After AS. Even in its infancy, After AS was denser and more disparate than anything light and whole that precipitated it. I lived in excruciating physical pain. I battled chronic fatigue and fickle vision. To move was to navigate quicksand with bags of concrete strapped to swollen limbs. My eyes, once green with silver halos, flamed furious in too-bright sunlight. Anterior uveitis, close cousin of ankylosing spondylitis, veiled my world in frosted glass.

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After AS was heavy, nonsensical, and steeped in shadow. After AS broke my body and nearly broke my spirit. The disease loomed and stung without apology. It screamed chaos into the hollow of my defeat.

I gave myself a pep talk before crawling out of a bed left unmade. I chose between a hot shower to loosen stubborn joints and a loaded dishwasher because I calculated the energy necessary for blueberry waffles, a clothed toddler, and our drive to daycare. Then the harder work began: earning a living while my disease flared. I was the breadwinner. A diagnosis didn’t change the expectation that I would provide.

Whenever my After AS body slowed my progress, my spirit cried out and asked a question that never serves me well: why me? I watched a mother jog behind a red stroller, and I wallowed. Unable to reconcile a life lived at warp speed with my new reality, I prayed for my grief to roll away.

But in the bleakest season of my disease, when I thought AS reigned supreme, Grace was as much my reality as pain, fatigue, and their wicked dance. Glimpses of the Before AS me (pain- and fatigue-free) were woven into my narrative. I breathed and did. I was slow and tentative, but I was enough: more precious than gold and Skittles to a child whose greatest need, love, was met in plenty. In the worst of my worst, my best was good enough for my son.

One morning my best consisted of dry Cheerios because, in a pain-induced “brain fog,” I forgot to buy milk the day before. My son didn’t lament his organic, overpriced milk. He cared about love blown into backyard bubbles the same evening. We chased those bubbles until a gold sun dipped into pink and indigo. “Amazing!” he exclaimed. “So amazing!” Playing with my child of wonder when my bones howled was amazing.

Today I realize that my tendency to divide my life into halves, into before and after illness without acknowledgment of the reprieves Grace bestows, is symptomatic of post-diagnosis pessimism. AS, known for its rudely unannounced twists and turns, had morphed the optimist in me into a pessimist.

And frankly it’s hard to shuck fear: fear of the unknown, fear of what new pain might riddle my body next. Pessimism and fear crave the deep dark; they work in tandem to extinguish light and smother hope.

I will never shuck fear for good. I’m optimistic about the likelihood of remaining in my current remission, but I catch myself fearing the future. I catch myself being human. I cope with fear as I tried to cope in the thick of my AS symptoms: by recovering Grace moments that hold me.

I revisit a portrait of my ginger son planting popsicle sticks in our garden. (Convinced that the sun’s gaze grew anything, he intended to plant pianos next.) I recall blue-green waves crashing against an Irish coastline that lulled me when I was younger. I memorize the precise shapes of these moments, and the experiences become my heart’s touchstones: reminders of a life defined by Grace rather than AS.

I accept that Grace moments lie behind and in front of me. Maybe my current remission will be permanent. Maybe it won’t, and that’s OK because struggle and joy can co-exist.

My choice to view my life and circumstances on a continuum, with Grace as much a constant as pain, fatigue, pessimism, or fear, may seem naïve and simplistic — especially on days when worry crushes optimism, and I must untangle myself from why me? thinking.

I’m committed to the daily surrender necessary to press forward into Grace, into holy, moment-by-moment reprieves from my disease’s unruliness and the pessimism it fosters in me. AS shapes me, but it doesn’t define me.

Before AS and After AS no longer reside in my way of thinking. Today there is only me, and I’m enough. Life with AS is still life. It hums.

source;http://themighty.com

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Ankylosing Spondylitis: How To Recognize a Flare so You Can Take Prompt Action

Ankylosing spondylitis symptoms can unexpectedly get worse, but these episodes can be managed. Learn how to recognize a flare so you can take prompt action.

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Back pain and stiffness are part of life when you have ankylosing spondylitis (AS), but there are times when symptoms get worse or new problems appear, only to go away after a period of time.

These are called “flares,” and working with your doctor to recognize and properly treat them will allow you to better manage your AS.

Ankylosing Spondylitis Flares: An Overview

People with AS have chronic inflammation of the sacroiliac joints that connect the spine to the pelvis, according to the Spondylitis Association of America. Back pain is the most common symptom and characteristic of AS, although it’s not always the first one to appear, says Robert Goldfien, MD, a rheumatologist at Kaiser Permanente East Bay in Richmond, California.

Flares are characterized by a worsening of symptoms like pain and stiffness. They’re typically followed by periods of remission, in which pain lessens. “Any form of inflammatory disease like AS has periods where it’s better or worse,” Dr. Goldfien says.

How often flares come on varies from person to person. Some may experience a flare once or twice a year for a week or two, while others may experience flares once a month or so, he adds.

Signs and Symptoms of AS Flares

During a flare you may experience:

More back pain and stiffness. Many people with AS have back pain every day, but flares can cause back pain and stiffness to get worse, Goldfien says.

Other painful joints. You may also experience tendonitis or joint swelling during a flare, especially in the knees and ankles, says Eric Matteson, MD, chair of rheumatology and a professor of medicine at the Mayo Clinic in Rochester, Minnesota. Other areas of the body that may also become swollen and painful include the hands and feet, heels, ribs, hips, and shoulders.

Eye problems. Any time AS gets worse, such as during a flare, there’s the potential to experience a complication of the disease that affects the eyes. As many as 40 percent of people with spondylitis experience inflammation of the eye, such as iritis or anterior uveitis, according to the Spondylitis Association of America. Eye inflammation can be painful, and you need to see your rheumatologist or ophthalmologist if you develop this complication of AS, Goldfien says.

Fatigue. “Fatigue is a very common symptom with inflammatory disease,” Goldfien notes, and it can get worse during a flare. It takes energy for your body to fight inflammation, and you could lose sleep from arthritis pain. “But if you treat the inflammation, the fatigue should be better, too,” he adds.

Spinal fusion. When you’ve experienced severe, frequent flares over the course of the disease, inflammation of the spine can lead to scarring of the tissue and the formation of extra bone, which can cause the spine to fuse into a curved position. However, the risk for spinal fusion can be lowered with treatment to control flares and inflammation, Goldfien says.

Managing AS Flares

Be sure to talk to your doctor in advance about what you should do when you’re hit with a flare. Goldfien recommends making an appointment with your rheumatologist any time your symptoms get significantly worse, especially if they begin to affect your quality of life and/or day-to-day activities. Your rheumatologist can diagnose whether your symptoms are related to a flare — or another cause — and help you manage them properly with treatment.

How your doctor treats a flare depends on the severity of your symptoms, Matteson says. “Flares can be managed sometimes with nonsteroidal anti-inflammatory drugs (NSAIDs), but may also require a brief course of prednisone or sometimes joint injections,” he says. In the case of a prolonged flare that isn’t going away, your rheumatologist may consider disease-modifying therapies, Matteson adds.

Advances in treatment can help you not only manage your flares but allow to better manage your AS over the long term as well. As Goldfien notes, “It’s important for people to know that there are medicines available that can be remarkably effective for this disease.”

source;http://www.everydayhealth.com/

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What I Hope For in the New Year as a Person With Ankylosing Spondylitis-drug rehab

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It’s that time of the year when the festive melody of Christmas should soothe the mind and warm up the heart. But here I am, sans the cheer, recovering from a chronic back ache and nursing a state of mind that is only leading me into a pool of depression. A week’s holiday went under house arrest due to untold woes of inflammation. It may sound to be a state of ultimate rest — that’s what our body needs when you take a break from long working hours — but a holiday on a bed is the last thing on your mind as a way of relaxation. Well, I kept my chin up by telling myself, “Cheer up, Christmas is here and near!” Some holiday movies of the season and books did enliven the spirit that was otherwise doused with pain.

When you live with an autoimmune disorder like ankylosing spondylitis that leads to chronic pain and fatigue, a big risk you carry all the time is of unpredictability. I always keep myself prepared with what can strike and when, but sometimes the timing just hurts. And what do you do then? Pick yourself up, all by yourself, and look ahead. That’s what I have learned. Sometimes you just need to keep your mind cool and say, “So what if my holidays are spoiled? So what if I have unbearable pain, I need to get up and face the sun? Get the much needed warmth, taste the bitter sweet winter, wrap yourself with whatever energy you have and move on.” So here I am, looking forward to one of my favorite festivals, sipping my coffee, all geared up to form my New Year’s resolution. Today, as I sit through a calmer and lesser depressed mind, I realize life is only as tough as I see it, and only I can lead it to a better tomorrow.

So what’s my resolution for the upcoming New Year? While people will plan for a new home, a child, a new job, vacations and celebrations, I just hope and wish that I have enough energy and endurance to run my life. Yeah, that’s the resolution. The pledge to gain more strength, fight the fatigue, emerge more supple and mentally stronger with a dollop of motivation to feel good about myself. Now that sounds like the perfect New Year resolution in the condition I am in. I’ve realized that when you live life with a chronic disorder, what you most need is the motivation to overcome the fear of the unseen. Because it is this fear that holds you back. It makes you imagine an untoward future causing more and more mental agony. It’s so important to take one day at a time. It’s imperative to take up every challenge the disease poses to you and put your heart in fighting it. You need the angel within you to strengthen your determination to overcome your woes.

Disorders like ankylosing spondylitis are not localized. It doesn’t just affect a part of my body. It tends to be systemic, affecting overall well-being and state of mind. It can instill fear, a sense of loss and disability; it can make me anti-social and dull my usual cheerful self. But it is still just a medical disorder. And my well-being is still in my hands. So while the town is painted red and green and I feel lonely within – I still know there’s a lot to look forward to. There’s a lot of joy of Christmas that is yet to come my way. I have put together a short list of what I want to do to make the next year better and am sure, dear readers, you may relate to some of these:

1. Strive to be fit and strong.

2. Shed the extra pounds and cleanse my body of toxins.

3. Make workouts a way of life – walk, dance, take up a sport I can bear, etc.

4. Discover peace of mind and try not to lose it

5. Make new friends and nurture old bonds of relationships, and most importantly…

6. Look at ankylosing spondylitis as a companion for life, know it better and forge a pact of kindness with it!

Believe me, I already feel good when I think of these resolutions. I know they are tough considering I barely have any energy to make so much a part of my life. But I am looking forward to drawing energy from fellow people. To reconnecting with a lost self, reading more, writing more, volunteering, spending time with loved ones and above all being kind to myself. There’s now a greater desire to go back to life’s motto – I will not let anything stop me.

Merry Christmas and a Happy New Year.

source;http://themighty.com

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FIGHT LIKE A GIRL WITH ANKYLOSING SPONDALITIS

I am 35 years old, and in 2007, I was diagnosed with Ankylosing Spondylitis. I was working two jobs and was constantly on my feet. I began to have problems walking all day. I could not get my feet to move like they were supposed to. I went to my doctor, and they tested me for gout. The test came back negative, so he sent me to a rheumatologist because he said he had no idea what was wrong.

I went and saw the specialist, and they ran some test and said I had rheumatoid arthritis. I told them it had to be something more than that because the pain in my Achilles tendons was unbearable. So they ran another test, and and it came back positive for AS. She started me on Enbrel, which worked for about a year, and then I had to be switched to Humira. This is a fantastic drug and worked very well for me up until I got pregnant and had to be off all meds. In my case, I didn’t need any while I was pregnant. I had never felt better. I had zero flare ups and felt amazing!After I had my son in 2013, I was still able to be

Image result for ankylosing spondylitis patients storiesoff all meds for about 5 more months. I started getting flare ups again, so the doctor put me back on Humira, but this time sadly, it didn’t work. She had consulted with Iowa City Hospital to see which medication she should change to, and I was pretty impressed that she didn’t just keep trying different ones. Iowa City said that most likely, from having my son, my body was now rejecting Humira. So they put me on a newer drug called Cimzia along with Indomethacin. It did the trick. It took a few weeks to start working, but I was feeling better again! But little did I know I would have to stop all medicine once again.

In November of 2014, I felt a lump in my left breast. I went to my OB\GYN, and he set me up for a mammogram and ultrasound if needed. As I was getting the mammogram done, the tech (who is a great friend of mine) said he was going to do an ultrasound as well. The radiologist came in to do the ultrasound, and in a matter of one look, he said he was going to do a core biopsy. I knew right away it was cancer. With this being the Tuesday before Thanksgiving, they put a rush on the biopsy so I didn’t have to wait so long for the results. I got called to come in and talk to them the day before Thanksgiving, and sure enough, I was positive for breast cancer. All I could think of was my little boys. I have a 1-year-old boy and a 2-year-old boy, but they are what is getting me through this. I had a double mastectomy with reconstruction done on December 15 and was released from the hospital the next day. All drains were removed just a week after surgery. I’m doing well and recovering very well. I will be seeing the oncologist this upcoming Friday to see what the next step will be with my journey. I have an excellent support team with me, as my mom is a 4-year survivor and my aunt is also a 3-time breast cancer survivor and lung cancer survivor. I worry my AS is going to take a toll on me soon, but as wonderful as all my doctors are, I know they will be able to help me with everything I am going through. I will continue to fight against both these diseases!!

Alissa
Illinois
Submitted 01/08/2015

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

SOURCE;http://www.fightlikeagirlclub.com

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I Am Thankful: Perspective on Ankylosing Spondylitis

I am thankful that I have been able to embrace the fight I have against the crippling disease of ankylosing spondylitis (AS) and I am thankful that in the process, I have been able to help inspire others to fight it too!

I never would have thought the words, “I feel blessed to have AS”, would roll off my tongue so frequently, but they honestly do. AS came along and joined me in life 16 years ago, and in that time, AS and I have gotten quite cozy together.

I will be honest, at first I wasn’t sure I wanted to come out publicly as a spokesman associated with a disease that can cause such pain, and also has the most awkward and hard to pronounce name. The first year following my diagnosis I wasn’t even sure how to pronounce “ankylosing spondylitis”, and that is because no one around me knew how to say it either, nor had anyone that I knew ever heard of it.

I think it’s pretty common to want to keep the news a secret; that a dreadful, painful, crippling disease has shown up in your body, like an uninvited party guest, crashing down on your big dreams and tearing up the plans you had laid out for the rest of your life! And I think we can also struggle with the idea of acceptance versus submission. I have fully accepted my new reality that I have a disease in my body called ankylosing spondylitis, but that doesn’t mean that I have given up and succumbed to it.

Just because I now live my life with this new reality and awareness does not mean I let the disease win.

In fact I think it’s quite the opposite. This disease has empowered me to research everything I can about it and in turn, discover a natural treatment plan based on a diet that was developed to fight AS by a professor of rheumatology. The Low Starch Diet for AS, developed by Dr. Alan Ebringer, is the most effective treatment I have tried over the years, and the foods I now eat are empowering me to live my life to the fullest each day.

Since self publishing my cookbook, “Pure and Simple Paleo: a Low Starch Cookbook” I have received the most heartfelt “thank yous” and testimonials. These thank you notes continue to reaffirm my decision to share my struggles and fight with AS publicly, so that I can help inspire others to fight it with all they’ve got too.

In the past week, I received the two thank you notes below. Reading these notes gave me both good feeling goosebumps and tears of joy. And it’s experiences like these that make me feel so blessed to have AS.

“HI ANDREA, I HAVE BEEN MEANING TO WRITE TO YOU FOREVER! I AM TURNING 40 TODAY, AND THANKS IN LARGE PART TO YOUR SELFLESS GIVING OF ADVICE AND SHARING OF YOUR TALENTS AND SKILLS IN THE KITCHEN, I FEEL BETTER NOW THAN I HAVE IN MY ENTIRE ADULT LIFE. I JUST WANTED TO EXPRESS MY GRATITUDE TO YOU FOR GIVING YOUR TIME (YOUR MOST VALUABLE POSSESSION) TO SHARE WITH THE AS COMMUNITY AND TO OFFER AN EXAMPLE OF HOW POSITIVITY, DEDICATION, AND CREATIVITY CAN TURN A NEGATIVE SITUATION OR HEALTH PROBLEM INTO AN IMMENSELY POWERFUL LIFESTYLE SHIFT. I AM SO THANKFUL TO HAVE DISCOVERED YOU AND YOUR RECIPES! I JUST HAD YOUR FLAXJACKS WITH MAPLE SYRUP AND BLUEBERRIES AS MY BIRTHDAY BREAKFAST! HAVE A GREAT DAY!” – BRONWYN, FELLOW AS WARRIOR

“DEAR ANDREA, FIRST OFF LET ME THANK YOU!! TONIGHT I HAD MY FAMILY OVER, TWO GROWN DAUGHTERS, THEIR HUSBANDS, GRAND-DAUGHTERS, IN-LAWS… EVERY DISH WAS FROM YOUR COOK BOOK!! THE FOOD WAS SO GOOD AND EVERYONE LOVED IT. SINCE IT WAS A BIRTHDAY CELEBRATION FOR A FEW OF THEM, I MADE THE HUMMINGBIRD CAKE AND NO ONE COULD BELIEVE THE CAKE WAS SO HEALTHFUL AND YET SO SCRUMPTIOUS. AND, FOR THE FIRST TIME IN MY ENTIRE LIFE (INCLUDING CHILDHOOD) I CAME AWAY FROM A FAMILY EVENT NOT BLOATED, NO HEADACHE, NO FATIGUE!! THANK YOU FOR PROVIDING THE IMPETUS TO TACKLE SOMETHING SO BIG AS DIET OVERHAUL.. I THOUGHT I WAS EATING CORRECTLY, BUT NOW REALIZED I HAD SO MUCH FURTHER TO GO. NOW, I’M ON MY WAY!! PLEASE KNOW THAT I HAVE ALREADY SHARED YOUR BOOK NAME WITH DOZEN PATIENTS AND WILL CONTINUE TO DO SO.” – ANDREA, FELLOW AS WARRIOR, WHO ALSO SHARES THE SAME NAME!

#IAmThankful. I am especially thankful for my husband for supporting me both emotionally, spiritually, and financially when I took the past year off to work full time developing and self publishing my low starch paleo cookbook. I am so thankful that this amazing man is my best friend and husband. I am thankful that this diet approach has empowered me to overcome the widespread inflammation that used to plague my spine, gut, and overall well-being. I am thankful for the friends and fellow AS Warriors I have met along the way. And I am thankful for the beautiful foods I eat each day that make me feel so alive and at peace with my body.

source;http://patientworthy.com/

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How do I Choose the Best Ankylosing Spondylitis Diet?

Choosing the best diet for ankylosing spondylitis, a kind of arthritis that afflicts the spine as well as the sacroiliac joints, requires selecting an eating plan that has omega- 3 fatty acids, a low percentage of starches and red meat, and a high amount of antioxidants. Exclusion is as much a factor as inclusion in any ankylosing spondylitis diet. Omega-6 fatty acids, for example, are frequently excluded or reduced by people diagnosed with ankylosing spondylitis because they can induce flare-ups and additional joint swelling.

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The Mediterranean eating lifestyle has been embraced as a top ankylosing spondylitis diet for some because it has a high percentage of omega-3 oils from the abundance of fish and legumes. While omega-6 fatty acids can increase inflammation, omega-3 fatty acids induce the opposite effect. By increasing the function of prostaglandins, omega-3 oils have the ability to reverse spinal swelling and pain associated with ankylosing spondylitis. Sufferers of ankylosing spondylitis also like that the Mediterranean diet is low is red meat, a major source of omega-6 fatty acids. Instead, this diet is anchored on fresh vegetables, olive oil, seasonal fruit, and seafood.

Even ankylosing spondylitis sufferers who do not embrace a Mediterranean diet or a fish-laden diet usually find a way to make omega-3 oils a major part of their daily nutritive consumption since research studies have supported claims that the oils reduce inflammation. Special foods containing these fatty acids are generally used to get occasional spikes in omega-3 oil. A New Zealand mussel known as the green-lipped mussel, for example, is a favorite among many ankylosing spondylitis patients because it has one of the highest amounts of omega-3.

Also, supplements containing krill oil, cod liver oil, and other forms of fish oil are daily sources of omega-3 fatty acids that many nutritionists recommend for an effective ankylosing spondylitis diet. Taking at least 0.105 ounces (3 grams) a day can often help control inflammation, reducing the need for anti-inflammation medication. Some studies even suggest that supplements can still help control inflammation for up to two months after a user stops taking them.

Antioxidants, according to research, can deter inflammation in several forms of arthritis, including ankylosing spondylitis. The most popular sources of these chemicals are in foods with vitamin E and beta carotene. Such foods include carrots, cantaloupe, and wheat germ.

Research studies claim starchy foods should be limited in an ankylosing spondylitis diet because they feed a microbe responsible for the spinal swelling and stiffness. Klebsiella is a microorganism that festers in the intestines as a result of undigested carbohydrates. The tracking of ankylosing spondylitis patients by some doctors suggests that low levels of carbohydrates and starches reduce klebsiella levels, thus reducing swelling of the joints.

While a controlled and strategic ankylosing spondylitis diet may temper pain and swelling, it typically cannot prevent bones in the spine from fusing together, which is a major risk of the disease. Controlling swelling, however, can preserve flexibility and range of motion, some nutritionists claim. Some ankylosing spondylitis patients claim that increasing omega-3 fatty acids and antioxidants while controlling starch and meats has helped them stave off major disability and bone fusion.

source;http://www.wisegeek.com/

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Ankylosing Spondylitis patients treated with the miracle Seignalet diet

Number of Ankylosing Spondylitis patients treated with the Seignalet diet over a period of 20 years : 122

100% remissions: 76     80/90% improvements: 40

50% improvements: 0     Failures: 6     Success rate: 95%

“It is a curious and depressing truth, demonstrated time and again in medical history that the desire of the average physician to administer powerful and active drugs is only equalled by the desire of the average patient to have powerful and active drugs administered to him.”

Barbara Griggs: “Green Pharmacy” (A history of medicines and drugs through the ages)

Newly diagnosed?

Are you newly diagnosed with Ankylosing Spondylitis? (Writes Chris Parkinson, translator and agent for the Seignalet family). Are you dreading a lifetime of taking powerful and potentially dangerous drugs to control it? What if the drugs don’t work? Or don’t work very well? Have you googled the side effects of the drug your doctor is prescribing? (If not you should do so). Do you want to avoid those side effects ?

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Or had Ankylosing Spondylitis for some time?

Or have you had Ankylosing Spondylitis for some time and are now looking for a natural therapy or diet to help reduce your dependence on powerful and potentially dangerous drugs and their nasty side effects or come off them altogether? Or have you tried all the drugs available and none can control your own Ankylosing Spondylitis?

Is there a natural way to reverse Ankylosing Spondylitis?

What if there was a diet which could actually reverse Ankylosing Spondylitis? It would surely be too good to be true wouldn’t it? Surely only a powerful drug can stop that dreadful pain or other distressing symptoms? What if the only side effects of the diet were clear skin, abundant energy, a svelte figure, perfect mental poise and equilibrium, prevention of cancer, Alzheimer’s, high cholesterol and heart disease in later life, increased longevity free from disease, and a host of other health benefits? This must be snake oil surely? But what if it was clinically trialled by a French professor of medicine with two and a half thousand volunteer patients over 20 years, during which the above benefits were demonstrated and meticulously recorded?

Hype, wrong information, misinformation and reality

All of us are constantly bombarded with hype about the latest “fad diet” or this and that magic supplement and in the US, where drug companies are allowed to advertise, the ads promoting a drug for Ankylosing Spondylitis will tell you to avoid “fad diets”. They would say that though wouldn’t they? Even if they knew that there was a diet which worked. You may also have read somewhere or been told by your doctor or the charity for Ankylosing Spondylitis (even on other pages on the google results page for your search) that there is no known cure for Ankylosing Spondylitis and no diet which has been proved to work for Ankylosing Spondylitis and you may even have been told to avoid being taken for a ride by “snake oil pedlars” or “medical magical mystery men”.

A diet which can reverse Ankylosing Spondylitis

Let’s be clear. It is quite true that there is no cure because Ankylosing Spondylitis has a known genetic component. Yet we say that there is a diet which can reverse Ankylosing Spondylitis because in addition to the genetic component over which you have no control, there are environmental, triggering factors which you can control. One of those environmental factors is your diet. Are we selling snake oil? It’s all very confusing isn’t it? How do you know who to trust for unbiased and scientifically trustworthy information? Everyone has their own agenda don’t they? Whether it’s out in the open or hidden. Like everyone else we too have an agenda and it’s not a hidden one. The agenda is to give you the information you need to reverse your disease. How much would you give to be able to do that? $5,000? $20,000? $100,000? Re-mortgage your house? Keep your money! Spend it on a good vacation (“holiday” for us Brits) and get a good tan, a real one – remember tans? (see further on). All the information you need is in a 10 dollar book. So if we are snake oil pedlars we’re not very good ones are we? There must be much better ways to get rich selling snake oil than selling a book. By the way, if you think we are snake oil pedlars, feel free to tell us so. There is an open forum on this site and we promise we won’t delete your post. Those results you see at the top of the page are genuine I can assure you, so if you think this is quackery you are mistaken but there are some caveats. Here they are:

  1. 1. Depending on how you eat at the moment you may have to make big changes in the way you eat, particularly if you are eating the “SAD” diet. (Standard American Diet). For the diet to work properly it has to be strictly adhered to, 100%. If you are currently following any of these diets: Paleo, Weston-Price, raw food, food combining, gluten free, dairy free, the transition to the Seignalet diet will be fairly easy however.
  2. 2. There will be a period of disintoxication as your body heals itself. This may result in some unpleasant effects like headaches, nausea or a loose bowel. These “detox” effects are only temporary however, and are actually welcome signs that your body is healing itself. To keep these symptoms to a minimum, the different elements of the diet can be introduced one by one, in stages, and if the detox effects become uncomfortable, the transition to the diet can be slowed down or even halted for a while until they pass before resuming at a sensible pace.
  3. 3. If you are on medication, you must not under any circumstances suddenly stop taking it. Once the diet starts to work however you may want to gently taper off the drugs with the consent of your physician. A large majority of Dr. Seignalet’s patients achieved complete remissions or very close to it and were able to come off their medication. Some however, only achieved 50% success and a few had no improvement at all. In case of less than 100% remission you may have to continue taking some medication, although hopefully a reduced, or much reduced dose.
Don’t come to regret in a few years time that you did not pay proper attention to this page!

Is this information trustworthy? Well you can purchase this book written by Dr. Seignalet’s daughters, one of whom is a medical doctor and judge for yourself, or you can carry on reading this site, there is lots of good stuff on here and it’s free. If you are not quite ready to buy the book, don’t shut this page down yet because this is your one big chance. Keep reading. Don’t dismiss this as hype, only to find out years later that others did it and it does work and you’ve endured years of needless suffering for nothing. Or if you do close the page down, bookmark it first and then come back to it later when you have time to read the site at leisure, properly.

his new book by Dr. Seignalet’s daughters, one of whom is a doctor, is called: “How to prevent reverse 100 diseases the new French way with Dr. Seignalet’s diet miracle.”

Its a short guide to Dr. Seignalet’s 700 pageScientific and Medical textbook called “Nutrition, the third medicine” (L’Alimentation ou la troisieme medecine), currently in course of translation. Don’t be fooled by the modest title by the way, Seignalet proved that nutrition is the first medicine.

Is it easy? No. But it’s not that difficult either!

We don’t want to brainwash you with clever advertising or subliminal messages. We hope you will use all your critical faculties. You will need them because we can give you the tools but you will have to do this by yourself. We are not going to pretend that it’s easy but it is probably a lot easier than you think and we promise you that the rewards will make the effort worthwhile. If you are motivated, we promise you can do it. We know from 20 years experience in France that you may start to see results straight away or it may take a little time. Many thousands of French men and women have already seen those results but we cannot do it for you.

Our Cro Magnon ancestors did not have Ankylosing Spondylitis

So what is this all about? (This is fairly long by the way but keep reading – it’s interesting.)

In 1868 in Southern France about 100 miles inland, due east from Bordeaux, in the Dordogne, five fossilised skeletons were found in a rock shelter by a geologist. These remains were clearly early “modern” humans, homo sapiens. Since then, more and more remains have been discovered in Europe, Asia and the American continent and the very earliest have been carbon dated to 45,000 years ago. The location of the first remains at Cro-magnon has given the name to these early humans (although the proper scientific name is European Early Modern Humans or Early Modern Humans). Scientific techniques, especially in the last 20 years, have allowed us to learn more and more about them. We can learn an astonishing amount about their diet from coprolites (fossilized faeces) which can be soaked in sodium biphosphate to reconstitute them for microscopic analysis. From their bones and teeth we can learn about their health, at what age they died and often, what caused their death. Recently scientists have even been able togene sequence their DNA and a recent discovery, thanks to recovery of DNA recovered from remains and gene sequencing shows that some of them bred with Neanderthals, an early human species which died out, and that we all have some Neanderthal DNA in us.

A light bulb may by now have been switched on and you are thinking: “Oh, the paleo diet, I know all about that”. You may even eat the Cordain/Wolf way yourself. Whoa, hold your horses. We are not there yet. We are going to a slightly different destination. So bear with me, even if you know all this stuff.

Anyway, to resume my story:

Early modern human remains in Europe, in Asia and on the American continent all show the same things:
  1. 1. These early modern, stone age humans were hunter gatherers.
  2. 2. Their diet was completely different to ours.
  3. 3. Although they had tough lives and the bones often show signs of trauma that has healed, (meaning that someone was looking after them during the healing process), they were largely disease free. (Yes, sometimes lunch wasn’t quite ready to become lunch and fought back!)
  4. 4. Not only were they largely disease free, they were superb human specimens compared to ourselves. They were fit and athletic. Their bones were much sturdier than ours, evidence for strong musculature. Their brains were larger and their skeletons were on average around a foot taller than the skeletons of our first neolithic ancestors. Some male skeletons have been found that were over 6 feet 5 inches!
  5. 5. We are descended from them and the time between them and ourselves in evolutionary terms is the blink of an eye. We have not had time to evolve to function well on a neolithic diet of dairy and cereals (10,000 years ago in the middle east and 5,000 years ago in Europe), then a “modern diet” of refined white sugar and refined white flour (18th and 19th centuries), grain instead of grass fed cows and sheep from the beginning of the 20th century and from mid 20th century onwards, huge amounts of pasteurised cow’s milk and dairy and heat and solvent refined vegetable oils and from the 70’s onwards a pre-packaged, factory made, junk diet, with enormous amounts of salt, sugar and trans fats, getting more and more devoid of real nutrients until the present day when most of what we eat is just artificially flavoured garbage. It’s a wonder we can still manage to drag ourselves around! Try this, watch some footage of crowds at various times of the twentieth century. Notice something? The people in the crowds look sicker and sicker and more and more obese, the closer they are to our own times. (I will find some stock crowd footage on youtube and embed them in a blog page showing this when I have time.) So much for the miracles of modern medicine. As we are genetically identical to them, the difference between this race of the superhuman caveman and ourselves can only be due to diet.

Meet the ancestors! These are reconstructions based on actual remains. This is how this paleolithic mother and daughter would have looked in real life. Look at the superb bone structure of the faces and how sturdy the heads and bodies are. No signs of acne, eczema, or psoriasis either, just clear skin. Just kidding around with the second bit.

Need more proof?

Accounts of early settlers in the US all paint the same picture of the poor state of health of the scurvy ridden settlers and the superb health and handsome appearance of the native American hunter-gatherers.

From 1671: “ New England’s Rarities, discovered in Birds, Beasts, Fishes, Serpents, and Plants of that Country” by Josselyn

A description of an Indian Squa (sic)

The Men are somewhat Horse Fac’d, and generally Faucious, (sic) ie. Without Beards ; but the Women many of them have very good Features ; seldome without a Come to me, or Cos Amoris, in their Countenance ; all of them black Eyed, having even short Teeth, and very white ; their Hair black, thick and long, broad Breasted ; handsome streight Bodies, and slender, considering their constant loose habit : Their limbs cleanly, streight, and of a convenient nature, generally, as plump as Partridges, and saving here and there one, of a model deportment ….”

Let’s look at what Loren Cordain says in his book “the Paleo Diet”

“……In other words, built into our genes is a blueprint for optimal nutrition – a plan that spells out the foods that make us healthy, lean and fit. Whether you believe the architect of that blueprint is God, or God acting through evolution by natural selection, or by evolution alone, the end result is still the same: We need to give our bodies the foods we were originally designed to eat.

Your car is designed to run on gasoline. When you put diesel fuel into its tank, the results are disastrous for the engine. The same principle is true for us: We are designed to run best on the wild plant and animal foods that all humans gathered and hunted just 500 generations ago. The staples of today’s diet—cereals, dairy products, refined sugars, fatty meats and salted, processed foods—are like diesel fuel to our body’s metabolic machinery. These foods clog our engines, make us fat, and cause disease and ill health………”

So is this site an advert for the Cordain/Wolf “Paleo (lifestyle) diet”? Not quite. The Seignalet (pronounce it “Saynyalay”) diet was designed by a French Professor of Medicine, Dr. Jean Seignalet.

It differs in a few important respects from Cordain and Wolf’s version of the caveman diet (and also from the Western Price Foundation diet come to that). One important difference is that the Seignalet diet was specifically created to reverse chronic diseases and clinically trialled on over two and a half thousand patients over twenty years by a professor of medicine and found to put into complete remission 91 diseases! In addition to reversing disease it can of course also prevent disease and many people in France have adopted it as a lifestyle diet.

Dr. Seignalet (who read, spoke and wrote excellent English which has replaced Latin as the international lingua franca of science and medicine), read Eaton and Konner’s seminal 1985 article in the New England Journal of Medicine: “Palaeolithic nutrition. A consideration of its nature and current implications” at exactly the same time as Cordain, ie. as soon as it was published. So there is not even a hair’s breadth between what Cordain and Wolf and what Dr. Seignalet consider to be the “original diet”. They all take their cue from Eaton and Konner. Except for one important thing and here it is:

1. Eaton and Konner make no reference to cooking. Cordain and Wolf assume that Early Modern Humans were cooking their meat, which means grilling it over a fire. But for Seignalet, cooked meats and especially grilled meats are a dangerous disease factor. You can see my translation of his chapter on the dangers of cooking on my blog.

Here is (my translation of) what he says in his chapter comparing ancient and modern foods:

“……Fire was invented about 400,000 years ago. However, there is absolutely no proof that fire would have been used to cook food before a recent period, 10,000 years ago. Furthermore, analysis of fossilized faecal remains show that during the Mesolithic, humans ate raw. So we can assume that cooking was little used or not used at all……”

2. Dr. Seignalet was what the French call an “enseignant/chercheur” (lecturer/researcher). He was paid by the French state to teach medical students but the other part of his job description was to carry out research. What he decided to research and how he carried it out was entirely up to him. Seignalet looked closely at all the foods we eat without any preconceived notions to discover how they are processed by our body and exactly why these non-ancestral foods harm us and it is this work, far more than conjecture about what our ancestors ate, which forms the basis of his diet. Paleo eaters may be surprised to learn for example that he allows rice.

3. Eaton and Konner wrote this in their 1985 article: “Ultimately of course, only experimental & clinical studies can confirm hypotheses about the medical consequences of dietary choices”. Dr. Seignalet took them at their word and only 3 years later, Seignalet was embarking on those studies and 20 years later, he had treated two and a half thousand patients with 115 different diseases, 91 of them successfully, with his diet. With the greatest of respect, no-one in the field of nutrition or medicine in the English speaking world has ever set out to prove their dietary theories like this. They may talk the talk but they don’t walk the walk. To my knowledge only the Russians have done anything similar, with their research on fasting. (See my blog article on fasting).

You may have already tried dietary modification for Ankylosing Spondylitis with some success, great or small – or even none at all. Regardless of the results you obtained, please now consider the Seignalet diet. This is to date, the only diet which:

A. Was trialled over a period of 20 years with over two and a half thousand patients, during which time adjustments were made in the light of results and improved theory.

B. Is the only treatment to have put into long term, complete remission, about 80% of patients treated with 91 different, so called “incurable diseases”.

source;http://seignaletplus.com/

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The kind of Ankylosing Spondylitis modification no one talk about this

Ankylosing Spondylitis (AS) is a type of arthritis that affects your spinal cord, and it causes some of the vertebrae (bones in your spine) to blend together. This leads to loss of your spine’s flexibility, and so many people with the condition have a stooped or hunched over posture. It may also affect your ribs, in which case you may experience breathing difficulties. Ankylosing spondylitis typically affects a higher number of men than women, and it usually occurs in people during late adolescence or early adulthood (in between the ages of 15-25 years). There is no specific cause found yet, which can be said to result in ankylosing spondylitis. However, scientists believe that genetic factors can influence your chances of developing the disease, particularly if you have gene known as HLA-B27. At the same time, it is possible that you have this particular gene but never develop ankylosing spondylitis.

The initial signs and symptoms of ankylosing spondylitis include a sensation of pain and stiffness in the hips and lower back, and you may experience these especially after you wake up in the morning or after long periods of physical inactivity. Ankylosing spondylitis most commonly affects the vertebrae of the lower back, the joint between your pelvis and the base of your spine, the cartilage between your ribs and breastbone, and the joints of your shoulders and hips. However, the pain and inflammation associated with ankylosing spondylitis is not restricted to these places, and you may experience inflammation in other parts of your body, including the eyes. If you have been experiencing pain in your lower back or buttock that turns worse in the morning, it may be time to consult a doctor to check if you have ankylosing spondylitis or some other health condition. If you notice any symptoms of the disease in your eyes, do not delay in seeing an ophthalmologist (eye specialist) in order to prevent damage and worsening of the symptoms.

Unfortunately, there is no cure for ankylosing spondylitis; but treatments are available to manage your symptoms and reduce the pain and inflammation. Seeking medical help and following your doctor’s advice is vital to keeping your ankylosing spondylitis symptoms under control, but you can also combine some alternative treatments and lifestyle changes with the conventional treatment to get relief from the symptoms. It has been seen that diet plays an important role in managing the pain associated with arthritis, and the same goes for ankylosing spondylitis too. There are certain foods that are known to fight inflammation and contribute to your overall health so that you can manage your ankylosing spondylitis symptoms better. Sticking to a healthy diet plan and knowing which foods to avoid can be significantly effective in helping you reduce the progress of the disease in your body and keep the symptoms in check. Here are some do’s and don’ts for your diet, which can work on providing you relief from the symptoms of ankylosing spondylitis.

Ok, I don't know about the link but this is funny.... yet it's not. I'd say I feel how this drawing looks.:

Foods You Should Eat to Battle Ankylosing Spondylitis Symptoms

Eating a well-balanced diet is not only beneficial for your overall health, but can also help in combating the symptoms of ankylosing spondylitis. Here are some of the foods that you should include in your regular diet if you have ankylosing spondylitis.

  • Fresh fruits and vegetables: Fruits and vegetables, especially the colorful ones, contain high quantities of antioxidants. Studies have shown that these antioxidants can be effective in fighting the symptoms of various kinds of arthritis, including ankylosing spondylitis. This is because they work towards protecting the cells in your body from substances known as free radicals, which contribute to pain and inflammation. In addition, eating plenty of fresh fruits and veggies helps your body to get most of the minerals and vitamins that it needs to stay healthy and strong. If you aren’t in the habit of including such foods in your diet, start by replacing packaged snacks with your favorite fruits or vegetables. They make a healthy alternative to such snacks, which may seem tastier but have no nutritional value and are high on calories. You can also experiment with different salads, smoothies, and soups to increase your intake of such foods

source;http://thehealthdigest.org/