9 Autistic activist said what it feels like Auditory Processing Disorders


Every Autistic adult I spoke with seemed to experience some level of auditory processing difficulty.  It stands to reason that Autistic children experience the same.


Children might not have the ability to communicate this disability.  And it might be difficult for adults to pick up on because it is not necessarily constant.  And if the hearing tests come back “normal” and professionals don’t seem to be talking about it….

We are left with an unaccommodated ability which is often written off as behavioral issues.
And of course there is the frustration that is certain when a disability is not supported appropriately which could easily contribute to “behaviors.


The thing is, I don’t have hearing problems. I can pick up faint sounds like the clock ticking at home. I score in the average range in hearing tests. But if somebody says something while the TV is on – or there’s music playing or other conversations going on around us – then although I can hear all the sounds, I can’t separate them very well. It’s a problem with processing the sensory input and I find it hard work and very frustrating, so I often keep out of conversations in noisy environments. In fact I prefer to avoid noisy social environments altogether.


-Auditory processing issues:  The way I filter and understand auditory information is different…and hard.  I don’t seem to naturally prioritize human speech; I have to consciously attend to that.  I don’t have perception of background vs. foreground noise; I hear everything at what a perceptive sound designer once called “equal presence.”  I also don’t conglomerate background or ambient noise into a collective din…I hear every single separate thing.  I have visual hearing…if I don’t have a concrete visual or at least a mental visual reference for a word or sound, I *cannot* differentiate it.  Basically, if I haven’t seen it before (and not just heard it before), I have a near-zero chance of understanding or being able to differentiate the sounds or syllables.  I hear in vowels, as I’ve read some other autistic people do…I mean I hear consonants, but I don’t process and translate them as readily and often have to more deliberately “patch” them in to my understanding of what’s being said to me.  The acoustics or reverberance of a room can profoundly affect how well I can hear—and therefore mentally function—in it.



Jennifer Muzquiz is an Autistic activist.  She said:   It is very difficult for me to process spoken language when I am lacking spoons or when there is a requirement for overwhelming sensory processing. If there are distractions (other noise, something catching my eye, something else on my mind, etc.) or I'm not in a place where it's appropriate to stim in order to regulate my focus, speech is the first thing to go... both the ability to listen and to be verbal. I can't carry conversations or even be attentive to someone speaking to me. It makes me very self-conscious and starts a rapid downward spiral to feeling like a failure, because I can't "function" as expected. This causes me to lose even more focus and switch to introvert mode, which blocks out all ability to listen/speak. Bring on the agoraphobia!



Amy Sequenzia is a non-speaking Autistic Activist.  She said:   I don't process spoken language most times after seizures. Sometimes for a long time. If I am in pain, like when I had gallbladder pain, I could not understand anything it was said and typing was only possible using one or two words at a time. Overwhelming places make me shut down to protect myself. The times I was being physically abused also made me rely on the visual.


"It gets so frustrating when people don't understand or believe what hearing is like for me. Especially with the CAPD because it gets better and worse, depending on environmental noise, stress levels, etc. and society still has zero concept of a disability that is not static."



A lot of people think it's avoidance or me being rude or my favorite "being hysterical", but putting those kinds of demands on me when I already asked you to stop is actually pretty rude, I think. #socialskillsforallistics



There is a white character down in the right hand corner holding a megaphone and a brain.  The text reads:  "Cynthia is an Autistic activist and published author.  She said:  'A note of condescension slips into the other person’s voice. I  may suck at reading body language, but I’m pretty good at gauging voice tone. Maybe they start speaking more slowly or repeating themselves. They downgrade their vocabulary to smaller words. They repeatedly ask questions like, “are you following me?” and “does that make sense?” They get pedantic, having decided I require some sort of instruction.  In short, they’ve decided I’m a little slow on the uptake.'"



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